Organisation and Services
Contact Details
Telephone:
0151 526 0134 or 0759 502 9150
Email:
enquiries@walkingwithgiants.org
Walking with Giants Foundation
Charitable Company Ltd by Guarantee
Charity number: 1123246
Providing advice and financial support to individuals and families affected by Primordial Dwarfism in UK The Walking with Giants Foundation was founded by Sue and John Connerty in 2008. In 2005, their son Alex was born with an unknown condition, however just over a year later he was pre-diagnosed with a condition called Microcephalic Primordial Dwarfism Type II, their son’s doctors at Alder Hey Hospital in Liverpool explained that he was the first child to be pre-diagnosed with the condition in the UK. At the time there was little information the doctors could give them about Alex’s condition and many questions asked by Sue and John were left unanswered. For their son, Alex, the condition meant that he spent a lot of time in hospital with serious health issues. In those first years of bewilderment and anxiety, John and Sue set on a mission to find out more information.
wwgf_official
Website: https://www.walkingwithgiants.org
FacebookTwitterCharity Commission